When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started. At the time, it was very difficult for her to find any source of information related to haemophilia. Novi has been instrumental in building the patients organisation, from a parents’ support group to a multi-sector organisation in 2005, when the Indonesian Hemophilia Society, formed by doctors, nurses, people with haemophilia and families was established and officially recognised by the Ministry of Health.
After attending a scholarship programme in France, early in his career, Prof Saliou Diop realised that a lot had to be done to improve...
Impacting Care podcast: Hear from our partners In 2022 we have talked to people with haemophilia, healthcare professionals, members of patient organisations or expert...
Ms Wajiha Javaid has been working with the Haemophilia Foundation – Pakistan (HFP) since she was 16. She is currently Executive member of HFP...
