When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started. At the time, it was very difficult for her to find any source of information related to haemophilia. Novi has been instrumental in building the patients organisation, from a parents’ support group to a multi-sector organisation in 2005, when the Indonesian Hemophilia Society, formed by doctors, nurses, people with haemophilia and families was established and officially recognised by the Ministry of Health.
Over the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where...
Just a few years ago, people with hemophilia in the northern part of had to travel 6 to 9 hours by bus or train...
Dr Laura Villarreal, paediatric haematologist and professor at the Faculty of Medicine at the University in Nuevo León - Mexico, has built up the...
