When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started. At the time, it was very difficult for her to find any source of information related to haemophilia. Novi has been instrumental in building the patients organisation, from a parents’ support group to a multi-sector organisation in 2005, when the Indonesian Hemophilia Society, formed by doctors, nurses, people with haemophilia and families was established and officially recognised by the Ministry of Health.
Clerment Masoabi Sefojane is an active young adult, living with severe haemophilia A in Bloemfontein, South Africa. He got involved with the South African...
Over the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where...
Kenya has come a long way since its first project supported by the NNHF in 2012. Dr Kibet Shukuku walks us through the journey...
